Bereavement

“As with his birth and at different times during his life, Michael’s death and all related aspects threw our family onto an emotional rollercoaster. Although naturally shy, I had found the best way to cope was to try to be brave and seek support. The end was no different. Simply sharing the events as they unfolded by phone or email brought strength and guidance from family, friends and especially the online CdLS communities.”

_{Excerpt from When Angels Take Flight: The Loss of a Loved One with Cornelia de Lange Syndrome}

Traducción al español:

Feliciano Ramos

_{Adaptada para el público general, familias afectadas y profesionales no familiarizados con el síndrome. Traducción al español realizada por: Enrique Serrano y Feliciano Ramos}

Source:

Diagnosis and management in Cornelia de Lange Syndrome: First international consensus statement. Nature Reviews Genetics, 19, 649-666, published on 11 jul. 2018