International Scientific Advisory Council (SAC)


welcome

to the International Scientific Advisory Council (SAC)

Goal of International Scientific Advisory Council (SAC)

Target of the International Scientific Advisory Council (SAC)

We are eager to support and share!

Knowledge and expertise from all over the world taken together in one group.  SAC stands for up-to-date information, available to as many people as possible. Experts on variable topics within Cornelia de Lange Syndrome work together to share interdisciplinary knowledge.

Sharing our information we do through publications in (international, peer-reviewd) journals, the CdLS-world website, newsletters of members and associates of the federation and by organizing symposia and congresses together with the CdLS-world federation.

A lot of information on different topics, collected and constructed in collaboration with parents, professionals and other involved persons, is already available on this website.
Can’t you find the right information or doesn’t the information provide the answer to your question(s)?

Go to Ask the Expert, write down your question and we will as soon and good as possible give a response

  

Team

BRAZIL
BRAZIL
BRAZIL
(MD) General Practitioner in Brazil

Dr. Andréa Scaletzky

Team Comunidad Argentina del Sindrome Cornelia de Lange

ARGENTINA
ARGENTINA
ARGENTINA
(MD) Genetics

Dra. Ana Laura Quaglio

ARGENTINA
ARGENTINA
ARGENTINA
Paediatrics & Genetics

Dr. Florencia Pabletich

ARGENTINA
ARGENTINA
ARGENTINA
Orthopaedics

Doctor Elias A. Escobedo Paz

Team Arbeitskreis Cornelia de Lange Syndrom e.V.

GERMANY
GERMANY
GERMANY
(MD) Molecular Genetics

Prof. Dr. Frank Kaiser

GERMANY
GERMANY
GERMANY
Psychiatry

Prof. Dr. Peter Martin

GERMANY
GERMANY
GERMANY
Genetics

Prof. Dr. Gabriele Gillessen-Kaesbach

Team Cornelia de Lange foreningen

DENMARK
DENMARK
DENMARK
Paediatrics

Dr. Anne-Marie Bisgaard

Team Asociación Española Síndrome de Cornelia de Lange (AESCdL)

SPAIN
SPAIN
SPAIN
(MD) Pediatrician - Clinical Genetics

Dr. Feliciano Ramos

Team ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

SWITZERLAND
SWITZERLAND
SWITZERLAND
(MD) Genetics

Dr. Armand Bottani

FRANCE
FRANCE
FRANCE
Clinical Genetics

Valerie Cormier-Daire

Team CdLS Foundation UK and Ireland

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
(MD) Gastroenterology

Dr. Peter Gillett

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Clinical Genetics

Dr. David FitzPatrick

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Behavioural Psychology

Dr. Jo Moss

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Behavioural Psychology

Dr. Caroline Richards

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Behavioural Psychology

Dr. Jane Waite

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Behavioural Psychology

Dr. Hayley Crawford

UNITED KINGDOM
UNITED KINGDOM
UNITED KINGDOM
Behavioural Psychology

Prof. Chris Oliver

Team Ass. Naz. di Volontariato Cornelia De Lange ONLUS

ITALY
ITALY
ITALY
Paediatrics & Genetics

Dr. Angelo Selicorni

ITALY
ITALY
ITALY
Genetic Counselling

Dr.ssa Anna Cereda

ITALY
ITALY
ITALY
Neuropsychiatry

Dr.ssa Paola Francesca Ajmone

Team Vereniging Cornelia de Lange syndroom

NETHERLANDS
NETHERLANDS
NETHERLANDS
(MD) Physician for ID, SIB & CdLS

Dr. Sylvia huisman

NETHERLANDS
NETHERLANDS
NETHERLANDS
Psychiatry

Dr. Inge van Balkom

NETHERLANDS
NETHERLANDS
NETHERLANDS
Developmental and Genetic Paediatrics

MD PhD. Leonie Menke

NETHERLANDS
NETHERLANDS
NETHERLANDS
Molecular Genetics Research

PHD. Kerstin Wendt

NETHERLANDS
NETHERLANDS
NETHERLANDS
Inclusive and Special Needs Education and Communication

PhD Saskia Damen

NETHERLANDS
NETHERLANDS
NETHERLANDS
Behavioural Psychology

Dr. Paul Mulder

Team Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

POLAND
POLAND
POLAND
Paediatrics

Prof. Dr. Jolanta Wierzba

Team the Cornelia de Lange Syndrome (CdLS) Foundation USA

UNITED STATES
UNITED STATES
UNITED STATES
Medical Director

M.D. Tonie Kline

UNITED STATES
UNITED STATES
UNITED STATES
Clinical Genetics

M.D, Ph.D. Matt Deardorff

UNITED STATES
UNITED STATES
UNITED STATES
Education

N.C.S.P Mary Levis

UNITED STATES
UNITED STATES
UNITED STATES
Behavioural Psychology

Ph.D Julia OConnor

UNITED STATES
UNITED STATES
UNITED STATES
Dentistry

D.M.D. Douglas Clemens

UNITED STATES
UNITED STATES
UNITED STATES
Gynecology, Genetics

M.D. Natalie Blagowidow

UNITED STATES
UNITED STATES
UNITED STATES
Child Psychiatry

M.D., M.P.H. Marco Grados

UNITED STATES
UNITED STATES
UNITED STATES
Clinical Genetics

M.D. Ian Krantz

UNITED STATES
UNITED STATES
UNITED STATES
CCC-SLP, Speech, Language and Feeding

Ph.D Cheri Carrico

UNITED STATES
UNITED STATES
UNITED STATES
Pediatric Ophthalmology

M.D. Alex Levin

Services/qualifications International Scientific Advisory Council (SAC)

Expertise and/or treatment center
Research center
1Research that is important to understand the cause, disorders and/or emotions of disorder
2Has proven comprehensive knowledge of the condition
3Secures this knowledge about the disorder in a colloborative way with association and other (international) institutes/organizations
4Ensures funding of disorder-relevant areas
5Carries out knowledge at national and/or international meetings and conferences and publications through the association
Contact

Contact

International Scientific Advisory Council (SAC)
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About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org