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These questions and answers are collected for and by people with Cornelia de Lange Syndrome () and professional experts around .

In doing so, we believe to be a helpful resource for those affected by  in their search for answers. Rare, but strong together!

Cornelia de Lange syndrome (CdLS) is a rare genetic disorder. Many people have never heard of it before. It causes several physical, cognitive and medical challenges. Although no two children with this condition are the same, there are many similarities in the external features and behaviour.

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