Community

CdLS World federation


The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.

mission

Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

Calendar of our events   

The International Federation of National CdLS Support Organizations (CDLS World)

The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.
Supports multiple communities
Supports
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Contact information

Read more about our community...

Our Volunteers and Supporters...

Council member

Gerritjan Koekkoek

Executive Council Member (Next Host)

Joana Mendivelso

Chair of the Care Council

Bernadette Dalingwater

Get connected

Follow these steps...
Otherwise contact your national centre of expertise

WaihonaCode.supportGroup.topic.support CdLS World federation


Our communities

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Dansk

Cornelia de Lange foreningen

denmarknorwayswedenfinland
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English

CdLS Foundation UK & Ireland

united kingdomireland
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spain
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

germanyaustriaswitzerland
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Español

Asociación Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brazil
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italy
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

netherlandsbelgium
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Français

ASSOCIATION FRANCAISE DU SYNDROME DE CORNELIA DE LANGE

franceswitzerlandbelgiumalgeria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

poland
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

united states
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australianew zealandmalaysiaphilippinessingapore
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Español

Fundación CdLS COLOMBIA

colombia