Bereavement

“As with his birth and at different times during his life, Michael’s death and all related aspects threw our family onto an emotional rollercoaster. Although naturally shy, I had found the best way to cope was to try to be brave and seek support. The end was no different. Simply sharing the events as they unfolded by phone or email brought strength and guidance from family, friends and especially the online CdLS communities.”

_{Excerpt from When Angels Take Flight: The Loss of a Loved One with Cornelia de Lange Syndrome}

Adaptation, la version française:

Andrée Benz

_{Adaptation, la version française, écrite par : Andrée Benz avec le soutien technique de WaihonaPedia, Gerritjan Koekkoek. Nous vous serions reconnaissants si vous pouviez nous apporter des améliorations}

Le travail sur l'adaptation française a été financé par l'Association Fransaise Syndrome Cornelia de Lange (AFSCDL)

Source:

Diagnosis and management in Cornelia de Lange Syndrome: First international consensus statement. Nature Reviews Genetics, 19, 649-666, published on 11 juil. 2018