International Scientific Advisory Council (SAC)


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alla International Scientific Advisory Council (SAC)

Goal of International Scientific Advisory Council (SAC)

Obiettivo del International Scientific Advisory Council (SAC)

We are eager to support and share!

Knowledge and expertise from all over the world taken together in one group.  SAC stands for up-to-date information, available to as many people as possible. Experts on variable topics within Cornelia de Lange Syndrome work together to share interdisciplinary knowledge.

Sharing our information we do through publications in (international, peer-reviewd) journals, the CdLS-world website, newsletters of members and associates of the federation and by organizing symposia and congresses together with the CdLS-world federation.

A lot of information on different topics, collected and constructed in collaboration with parents, professionals and other involved persons, is already available on this website.
Can’t you find the right information or doesn’t the information provide the answer to your question(s)?

Go to Ask the Expert, write down your question and we will as soon and good as possible give a response

  

Squadra

BRASILE
BRASILE
BRASILE
(MD) General Practitioner in Brazil

Dr. Andréa Scaletzky

Squadra Comunidad Argentina del Sindrome Cornelia de Lange

ARGENTINA
ARGENTINA
ARGENTINA
(DCC) Médica genetista

Dra. Ana Laura Quaglio

ARGENTINA
ARGENTINA
ARGENTINA
Orthopaedics

Doctor Elias A. Escobedo Paz

Squadra Arbeitskreis Cornelia de Lange Syndrom e.V.

GERMANIA
GERMANIA
GERMANIA
(MD) Molecular Genetics

Prof. Dr. Frank Kaiser

GERMANIA
GERMANIA
GERMANIA
Psychiatry

Prof. Dr. Peter Martin

GERMANIA
GERMANIA
GERMANIA
Genetics

Prof. Dr. Gabriele Gillessen-Kaesbach

Squadra Cornelia de Lange foreningen

DANIMARCA
DANIMARCA
DANIMARCA
Paediatrics

Dr. Anne-Marie Bisgaard

Squadra Asociación Española Síndrome de Cornelia de Lange (AESCdL)

SPAGNA
SPAGNA
SPAGNA
(MD) Pediatrician - Clinical Genetics

Dr. Feliciano Ramos

Squadra ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

SVIZZERA
SVIZZERA
SVIZZERA
(MD) Genetics

Dr. Armand Bottani

FRANCIA
FRANCIA
FRANCIA
Clinical Genetics

Valerie Cormier-Daire

Squadra CdLS Foundation UK and Ireland

REGNO UNITO
REGNO UNITO
REGNO UNITO
(MD) Gastroenterology

Dr. Peter Gillett

REGNO UNITO
REGNO UNITO
REGNO UNITO
Clinical Genetics

Dr. David FitzPatrick

REGNO UNITO
REGNO UNITO
REGNO UNITO
Behavioural Psychology

Dr. Jo Moss

REGNO UNITO
REGNO UNITO
REGNO UNITO
Behavioural Psychology

Dr. Caroline Richards

REGNO UNITO
REGNO UNITO
REGNO UNITO
Behavioural Psychology

Dr. Jane Waite

REGNO UNITO
REGNO UNITO
REGNO UNITO
Behavioural Psychology

Dr. Hayley Crawford

REGNO UNITO
REGNO UNITO
REGNO UNITO
Behavioural Psychology

Prof. Chris Oliver

Squadra Ass. Naz. di Volontariato Cornelia De Lange ONLUS

ITALIA
ITALIA
ITALIA
Paediatrics & Genetics

Dr. Angelo Selicorni

ITALIA
ITALIA
ITALIA
Genetic Counselling

Dr.ssa Anna Cereda

ITALIA
ITALIA
ITALIA
Neuropsychiatry

Dr.ssa Paola Francesca Ajmone

Squadra Vereniging Cornelia de Lange syndroom

PAESI BASSI
PAESI BASSI
PAESI BASSI
(MD) Physician for ID, SIB & CdLS

Dr. Sylvia Huisman

PAESI BASSI
PAESI BASSI
PAESI BASSI
Psychiatry

Dr. Inge van Balkom

PAESI BASSI
PAESI BASSI
PAESI BASSI
Developmental and Genetic Paediatrics

Dr. Leonie Menke

PAESI BASSI
PAESI BASSI
PAESI BASSI
Molecular Genetics Research

PHD. Kerstin Wendt

PAESI BASSI
PAESI BASSI
PAESI BASSI
SAC Member

Prof. Dr. Saskia Damen

PAESI BASSI
PAESI BASSI
PAESI BASSI
Behaviour specialist

Dr. Paul Mulder

Squadra Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

POLONIA
POLONIA
POLONIA
Paediatrics

Prof. Dr. Jolanta Wierzba

Squadra the Cornelia de Lange Syndrome (CdLS) Foundation USA

STATI UNITI
STATI UNITI
STATI UNITI
Medical Director

M.D. Tonie Kline

STATI UNITI
STATI UNITI
STATI UNITI
Clinical Genetics

M.D, Ph.D. Matt Deardorff

STATI UNITI
STATI UNITI
STATI UNITI
Education

N.C.S.P Mary Levis

STATI UNITI
STATI UNITI
STATI UNITI
Behavioural Psychology

Ph.D Julia OConnor

STATI UNITI
STATI UNITI
STATI UNITI
Dentistry

D.M.D. Douglas Clemens

STATI UNITI
STATI UNITI
STATI UNITI
Gynecology, Genetics

M.D. Natalie Blagowidow

STATI UNITI
STATI UNITI
STATI UNITI
Child Psychiatry

M.D., M.P.H. Marco Grados

STATI UNITI
STATI UNITI
STATI UNITI
Clinical Genetics

M.D. Ian Krantz

STATI UNITI
STATI UNITI
STATI UNITI
CCC-SLP, Speech, Language and Feeding

Ph.D Cheri Carrico

STATI UNITI
STATI UNITI
STATI UNITI
Pediatric Ophthalmology

M.D. Alex Levin

Servizi/qualifiche International Scientific Advisory Council (SAC)

Centro di ricerca
1Ricerca che è importante per capire la causa, i disturbi e/o le emozioni del disturbo
2Ha una comprovata conoscenza completa del disturbo
3Assicura questa conoscenza del disturbo in modo colloborativo con l'associazione e altri istituti/organizzazioni (internazionali)
4Assicura il finanziamento delle aree rilevanti per il disturbo
5Porta avanti la conoscenza in incontri e conferenze nazionali e/o internazionali e pubblicazioni attraverso l'associazione
Contatto

Contatto

International Scientific Advisory Council (SAC)
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About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org