Calendário dos nossos eventos
Quer esteja à procura da próxima reunião familiar, um workshop online, ou apenas queira ver o que se passa no mundo de uma doença rara, o calendário de eventos tem todo o quê, quando e onde precisa.
Abaixo verá eventos sobre uma doença rara hospedados em qualquer parte do mundo.
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
the Cornelia de Lange Syndrome (CdLS) Foundation USA
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International CdLS Awareness Day
Concluído! -
2022 CdLS Foundation National Virtual Family Conference
Concluído! -
Gastrointestinal (GI) Challenges: Critical Care and Treatment Approaches
Concluído! -
Neurodevelopmental Disorders and Behavioral Management
Concluído! -
How to Address Challenging Behaviors Webinar
Concluído! -
Genetic Testing
Concluído! -
Phenotypic Analysis of Patients with SMC1A Mutations and Epilepsy
Concluído! -
1st World conference 2001, USA síndrome de Cornelia de Lange (CdLS)
Concluído!
