Comunità

the Cornelia de Lange Syndrome (CdLS) Foundation USA



Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.

Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.

The Foundation’s mission

The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

Calendario dei nostri eventi

Meet the Team

The CdLS Foundation employs a professional staff, who are available to provide support and information, and help with fundraising events and awareness activities.
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us

Informazioni di contatto

302 West Main Street
Avon, Connecticut 06001
United States

Phone:+1 860-676-8166
Fax: +1 860-676-8337

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Executive Director

Bonnie Royster

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