the Cornelia de Lange Syndrome (CdLS) Foundation USA
Since 1981, the CdLS Foundation has opened its doors to individuals with CdLS and their family members.
Each year the community grows by the hundreds as research, treatment and understanding of CdLS advance. Since its inception, the Foundation has been working to fulfill its slogan of reaching out, providing help and giving hope to anyone touched by this little-known genetic syndrome or other isolating conditions. Much has been achieved since the first Family Gathering, but there is more to do.
The Foundation’s mission
The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.
Meet the Team
Uitgebreide informatie over ons
Onze vrijwilligers en supporters
Bonnie Royster
Netwerk van deskundigen voor de the Cornelia de Lange Syndrome (CdLS) Foundation USA
expertisenetwerk the Cornelia de Lange Syndrome (CdLS) Foundation USA
Samenwerking helpt ....
Samenwerken met andere communities biedt gedeelde kennis, sterke belangenbehartiging, gebundelde middelen en snellere vooruitgang in onderzoek. Samen maakt deze samenwerking mensen sterker, versterkt het hun stem, bevordert het behandelingen en vergroot het de bewustwording, wat uiteindelijk positieve verandering teweegbrengt.
Bekijk onze huidige partners hieronder
Cornelia de Lange foreningen
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CdLS Foundation UK and Ireland
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Asociación Española Síndrome de Cornelia de Lange (AESCdL)
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Canadian CdLS Foundation
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(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה
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Arbeitskreis Cornelia de Lange Syndrom e.V.
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Comunidad Argentina del Sindrome Cornelia de Lange
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Associação Brasileira Síndrome Cornélia de Lange
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Ass. Naz. di Volontariato Cornelia De Lange ONLUS
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Rarissimas - Associação Nacional de Deficiências Mentais e Raras
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Vereniging Cornelia de Lange syndroom
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ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
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Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
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the Cornelia de Lange Syndrome (CdLS) Foundation USA
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The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)
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Fundación CdLS COLOMBIA
