How are the Organs Affected in Adults with CdLS?

        For forældre, plejere, sundhedsplejersker og lærere opstår der ofte bekymringer og spørgsmål vedrørende pleje og velvære for personer med Cornelia de Lange syndrom. 

Organ problems in adults with CdLS are similar to those in children with CdLS. 

Usually the heart defects, which are detected during the first years of life, do not cause any unexpected complications in adulthood.

If kidney abnormalities have been detected, the following should be monitored

Prostate enlargement has been found in 10% of men with CdLS by the age of 41.  Prostate enlargement is common in men over 50 in the general population.

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