Adult medical Follow-up
Para pais, prestadores de cuidados, prestadores de cuidados de saúde e professores, surgem frequentemente preocupações e questões relativas aos cuidados e bem-estar dos indivíduos com síndrome de Cornelia de Lange (CdLS).
Most people with CdLS reach adulthood because of improved care, especially in the first year of life.
Many medical disciplines tend to be involved in the medical care of adults with CdLS. As many disciplines are involved, it is important that there is co-ordination in care.
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as nossas Perguntas e Respostas dos nossos peritos
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