Paediatric Medical Care
For forældre, plejere, sundhedsplejersker og lærere opstår der ofte bekymringer og spørgsmål vedrørende pleje og velvære for personer med Cornelia de Lange syndrom.
CdLS is usually recognised from birth by an experienced children’s doctor (paediatrician or clinical geneticist). Paediatricians or clinical geneticists play a key part in the clinical care of a child with CdLS.
Once an infant or child has been diagnosed with CdLS, they will need to be assessed for common structural abnormalities of the body associated with the syndrome. These may require management or surveillance.
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