Historie doświadczeń

Severity Scores


Severity scoring procedures have been described to indicate the severity of CdLS. It should be noted that none of these procedures consider the severity of CdLS as experienced by families. Scoring procedures also do not estimate the severity of all organ systems that may be affected in CdLS.

Zalecenie(a)

Severity Scores

R3
Obecnie dostępne schematy oceny nasilenia objawów powinny być stosowane ostrożnie, ponieważ nie odzwierciedlają one w wystarczającym stopniu nasilenia objawów odczuwanych przez osoby z CdLS i ich rodziny.

Nikt nie udostępnił jeszcze historii na temat Severity Scores, podziel się z nami swoją historią na ten temat!


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