Spørg eksperter

Hair pulling


SpørgsmĂ¥l

My young daughter with CdLS has recently begun pulling her hair. At times it is hard enough that she pulls clumps out. Is this associated with CdLS?

Svar fra vores eksperter

I would think that hair pulling was a sign of self-injurious behavior (SIB), which, as you know, may be exacerbated by discomfort (such as reflux). Hair twirling can be a mechanism of comforting, but not hair pulling like that. If she does not have worsening reflux, I would have them check the usual potential pain-causing things (e.g. ear infection, tooth infection, urinary tract, sinus infection etc.). I would recommend contacting your daughter's Pediatric GI doctor as a first step to rule out possible medical reasons for the behavior

TK 7-13-10

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Anbefaling(er)

Pain and Behaviour

R18
As pain can easily remain unrecognised in a child with CdLS, all care providers should be aware of the different manifestations and the possible sources of pain. Specific tools to assess pain are recommended.

Anbefaling(er)

Self-injurious and aggressive behaviour

R54
To identify the cause of self-injurious behaviour in individuals with CdLS, medical assessment, specifically looking for sources of pain, should be followed by behavioural assessment of self-restraint then functional analysis.
R55
Treatment of self-injurious behaviour should include both medical and behavioural strategies.

Hvileansvar

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