Estey’s parents have talked about a time when Estey was very distressed after a lunch event was cancelled, and they assumed it was the change of plan causing the distress. It later transpired that Estey was really concerned that she would not be getting any lunch.
By Dr Alice Welham, Dr Jo Moss and Professor Chris Oliver
Cerebra Centre for Neurodevelopmental Disorders, University of Birmingham
CdLS Reaching Out UK & Ireland, BEHAVIOUR SPECIAL REPORT; GROWING UP WITH CdLS, published on 1 maj 2011
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