What medical care may a child with CdLS need?
There are a number of area's where medical care can be needed in CdLS, depending the severity and environmental circumstances.
Anbefaling(er)
What medical care may a child with CdLS need?
R10
Every infant and young child with CdLS should be assessed for cardiac (heart) and renal (kidney) malformations subsequent to diagnosis.
R19
Regular follow-up of every child with CdLS is needed, preferably by a paediatrician or clinical geneticist experienced in treating individuals with CdLS; schedules depend on local practices and possibilities.
Vereniging Cornelia de Lange syndroom
vereniging@cdlsworld.org
Seneste nyt
