CdLS Foundation UK and Ireland

In the UK & Ireland the Foundation is run entirely by volunteers - including parents and professionals, plus a part-time Office Administrator. Trustees are elected, or re-elected at the AGM. In addition, we have regional points of contact the Regional Volunteers.

Registered Charity No. 1054033.


The CdLS Foundation UK & Ireland is a family support organisation which exists to ensure early and accurate diagnosis of CdLS throughout the world, promoting research, and enabling individuals, families, friends and professionals make informed decisions and plan for the affected person’s present and future.

Go back to communty overview...

Join the community...

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: