Scoliosis

        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

Scoliosis is a sideways curvature of the spine. It develops in approximately 30% of individuals with CdLS by 10 years of age and is common in adults with decreased mobility. Scoliosis in CdLS should be assessed at regular medical check-ups. 

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