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Can individuals with CdLS have children?


        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

A small number of women with CdLS have given birth. Often, mothers have only been diagnosed after their child has been diagnosed with CdLS. Few men with CdLS have fathered a child, though there is little data about fertility in males with CdLS. 

Sexual education should be offered to individuals with CdLS and education should be appropriate to the level of understanding. Contraceptive options are the same as for the general population.


Recommendation(s)

Can individuals with CdLS have children?

R20
Sexual education appropriate to the level of understanding should be offered, and contraception management should follow local standard for the general population.
R21
Hysterectomy is indicated if abnormally heavy bleeding at menstruation is present and does not respond to medical treatment.

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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.