Living arrangements
Para pais, prestadores de cuidados, prestadores de cuidados de saúde e professores, surgem frequentemente preocupações e questões relativas aos cuidados e bem-estar dos indivíduos com síndrome de Cornelia de Lange (CdLS).
Feeling Right at Home
Just as you would do for a typical child, as your son or daughter with CdLS moves into adulthood, it’s a natural time to consider a more independent lifestyle for him or her. And this may involve living at home with greater independence or moving away from home and living more on their own. The goal is to have your child be in a happy, appropriate and safe environment.
one that you as a family feel comfortable with!
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