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Ptosis surgery


Question

My daughter is a candidate to have surgery for her ptosis. Do people with CdLS have a better quality of life if this surgery is done? What are the side effects?

Answer of our experts

Ptosis surgery is necessary for any of the following reasons:

If it is impairing visual development by locking the pupil

If it is causing your child to lift her chin significantly to see straight ahead

If you would like to normalize her appearance

Without examining her it is difficult to know if she fits into category 1 or 2. Only you can determine if she is in #3

AL/TK 7-13-10

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Recommendation(s)

The eyes and the visual system

R36
Surgical correction of ptosis should be considered if vision is significantly affected or if the individual is lifting their chin in attempt to see more clearly and it is affecting the individual’s ability to move around.
R37
Blepharitis in individuals with CdLS should be treated conservatively with lid hygiene. Nasolacrimal duct obstruction (blocked tear ducts) should be suspected if symptoms are not improved with lid hygiene.
R38
Vision should be regularly evaluated in all individuals with CdLS, especially in infancy and childhood. Problems with vision should be corrected early to prevent amblyopia (lazy eye), although children may have difficulty tolerating glasses or contact lenses.

Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

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