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Pain and Behaviour

For forældre, plejere, sundhedsplejersker og lærere opstår der ofte bekymringer og spørgsmål vedrørende pleje og velvære for personer med Cornelia de Lange syndrom.

Due to limited communicative abilities, individuals with CdLS may be unable to report pain and it may be difficult to identify the cause.

Pain in CdLS can lead to substantial behavioural difficulties.

Anbefaling(er)

Pain and Behaviour

R18

As pain can easily remain unrecognised in a child with CdLS, all care providers should be aware of the different manifestations and the possible sources of pain. Specific tools to assess pain are recommended.

Pain and Behaviour

Anbefaling(er)

vores spørgsmål og svar fra vores eksperter

Compulsive behavior

Postoperative pain medication

Chronic GI Pain

Malrotation Surgery

Body odor and bloody diaper

Lower abdominal pain

Teething

Hair pulling

Behavior medications

Teeth Grinding

Bone Pain

Painful Bowel Movement

C. Difficile (Colitis)

Bladder control

Cyclical Behavioral Patterns

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Compulsive behavior  