Living arrangements
Per i genitori, gli assistenti, i fornitori di assistenza sanitaria e gli insegnanti, sorgono spesso preoccupazioni e domande riguardanti la cura e il benessere degli individui con sindrome di Cornelia de Lange.
Feeling Right at Home
Just as you would do for a typical child, as your son or daughter with CdLS moves into adulthood, it’s a natural time to consider a more independent lifestyle for him or her. And this may involve living at home with greater independence or moving away from home and living more on their own. The goal is to have your child be in a happy, appropriate and safe environment.
one that you as a family feel comfortable with!
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