vraag het onze experts


Breaking eye glasses, Behavior


My 17-year-old daughter breaks her glasses when she is upset or sometimes just breaks them. I don’t know why or what to do.

Antwoord van onze experts

Thank you for your recent email about your daughter and her habit of breaking glasses when she is upset. Unfortunately, this behavior is very common in our patients with CdLS. We don't have an exact answer for why this happens, but our best thoughts involve two ideas. The first is that many of our CdLS patients object to the FEEL of the glasses. They have what we call "sensory issues" that make wearing anything on the face/head a challenge. (Hats, glasses, etc).

he second idea is that they may not actually notice better vision with the glasses on (versus when they are off). Some of our patients are very nearsighted. You don't mention what her glasses are like (very strong nearsighted glasses might be the case). In our nearsighted patients, they actually see quite fine when looking at things up close, both with AND without the glasses. Distance vision is typically blurry without glasses, but if many of her activities involve looking at things at arm’s length or closer, she may not find them as helpful.

As for what to do: I would suggest continuing to try the glasses as much as possible. Some glasses are more durable than others, as you know. Your optical shop should be able to help you find a frame that is stronger compared to others. Of course NO FRAME is 100% indestructible. A 17-year-old upset gal can certainly break almost any pair. Some of our families try to anticipate this behavior when their family member is really really upset, but that can be difficult to predict.

Some of our families are able to get a back-up pair of glasses. If you are fortunate enough to do so, you can have her wear the back-up pair while the first pair is being fixed. Not everyone is able to do so, however, so if you cannot, just keep trying to do the best you can.

Overall, the most updated prescription and best fitting frames will tend to annoy her the LEAST. So, you will want to keep your regular eye appointments and will want to keep the frames as adjusted as possible (your optical shop should do adjustments free of charge.)

Finally, please realize that this is a very frustrating problem for you and other patients with CdLS. You are not alone. Do the best you can, but realize that your daughter may wind up breaking more frames in the future.

SS/TK 7-13-10

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De ogen en het gezichtsvermogen

Chirurgische correctie van ptosis dient overwogen te worden als het zicht er significant door beïnvloed wordt of als het individu de kin optilt in een poging om beter te kunnen zien en als het de mogelijkheid van een individu om vrij te bewegen beperkt.
Blefaritis bij mensen met CdLS dient conservatief behandeld te worden met ooglidhygiëne. Er moet gedacht worden aan nasolacrimale obstructie (verstopte traanwegen) indien symptomen niet verbeteren met ooglidhygiëne.
De visus van alle mensen met CdLS moet regelmatig gecontroleerd worden, met name tijdens de zuigelingenperiode en de kindertijd. Problemen met het zicht dienen zo vroeg mogelijk gecorrigeerd te worden om amblyopie (lui oog) te voorkomen, hoewel kinderen moeite kunnen hebben met het verdragen van een bril of contactlenzen.

Juridische disclaimer

Houd er rekening mee dat de Ask the Expert service  is gemaakt door vrijwillige professionals in verschillende aandachtsgebieden. Antwoorden worden niet beschouwd als een medisch, gedrags- of educatief consult. Vraag de Expert is geen vervanging voor de zorg en aandacht die de persoonlijke arts, psycholoog, pedagogisch adviseur of maatschappelijk werker van uw kind kan bieden

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