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care-intensive

care-intensive: a lot of information is needed. A care-intensive person is somebody with a physical, mental or behavioural disability (or a combination thereof) and being seldom seen like with מצב נדיר must get the special cure or care that most people do not know about,
care-intensive: Because of the rare aspect of מצב נדיר family members are often, (forced to be), the advocate that can help by being better informed as their cure or care providers,
care-intensive: Because of the rare aspect of מצב נדיר family members are often, (forced to be), the advocate that needs to ask these questions for the better of their family member (or themselves!),
care-intensive: a word that we came up with, with which we focus on the experience of the care with מצב נדיר rather than the diagnostics.

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