Family Emotions

To care for a person with CdLS can create several types of issues or questions for the parents, siblings, grandparents, family, friends, care and education people.

When a child with handicaps is born," says Gwen Whiting, "the parents get to be in crisis for six weeks. Then they get a year to grieve. After that society expects them to be over it."
The problem says Whiting, is that real grieving doesn't fit a neat timetable, and the failure to let grief take its natural course can be devastating.

• A better way tomorrow
• Kaden's story
• Kindness Has to Start Somewhere
• Dealing with Depression
• Public Scrutiny: As Different as Snowflakes...
• Grieving: Guilt Can Motivate Change
• Grieving: Like it or Not, It Serves a Real Purpose
• Grieving: How to Be a Survivor
• Grieving: Take Time to Grieve
• Discussions on Living Arrangement Choices
• The Impact of Childhood Disability: The Parent's Struggle
• Parents, a Crucial Resource
• Ensuring Self-Care for Parents Raising a Child with CdLS
• Ways to Support Your Child Who Does Not have CdLS
  • A Closer Look: Supporting Sofia
• Taking Care of Me
• Healthy Coping Skills 
• Dead - Simple
• Caring for a Medically Complex Child
• Raising a Child with a Disability: Welcome to Holland