Een overzicht van de transitie

"Transition" is the description for the transition period with planned and unplanned changes that you and your child go through during the period when your child transitions from child, adolescent to adult.

Transition, an overview

"Transition/Transition" represents the period of changes that you and your child go through during a transition period in life. In the 'Path Forward' we are talking here about your child's transition from child/young person to adult. (Age 12 - Age 30)

This transition period is a period for which we can plan a lot in advance to make everything go as smoothly as possible.

Nevertheless, things can happen during this transition period that we did not expect at all. We can never fully control the future or plan exactly everything in advance.

But...the more we know what to expect and what the possibilities are, the better we know what decisions to make and the smoother your child's transition period can be.

Some important life changes happen to every young person, including your child. Often (current) legislation also plays a role in this.

  • An important change is the transition from 'child' to 'adult'; puberty!
  • In the field of education, many transitional stages take place. Current legislation gives every child the right to education. A child learns early in life, going to a pre-school if possible, then to primary school and perhaps to further education. Sometimes other forms of education and learning are needed. As your child grows older, several transitions take place. It is important to consider which educational transitions are necessary and important for your child.
  • Another important change takes place the moment your child becomes of age. Guardianship may then be needed so that you, as parents or family can (co)decide on important matters, medical care or where your child will live.
  • The young person's insurance policies may no longer be covered by you as parents.

During the transition period, young people with CdLS and their loved ones have to deal with the above changes, as well as changes in daily environment, moving out of home and social changes.

Your child's care changes from developmentally and parent/family-centred to a more individual/independent tailored approach.

Some changes are difficult to predict. For example, a young person's needs may change during the transition phase. Or a programme that first seemed ideal may suddenly seem inappropriate. You may also be moving house, government funding may change, a day care programme may disappear or a family member may no longer be able to fulfil the role of carer.

On this site, we will elaborate on the various key components of transition, namely general health, financial help, legal help, education, work opportunities/day care and housing.


Bonnie Royster

The Cornelia de Lange Syndrome (CdLS) Foundation (USA) provides a host of services for anyone touched by this little-known genetic syndrome and other isolating conditions. Learn more about us, visit

Page history
Last modified by Gerritjan Koekkoek on 2023/08/17 09:54
Created by Gerritjan Koekkoek on 2022/02/28 14:32

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