Information

Planning for best quality of life


Through advances in treatment, research and understanding of CdLS, people with CdLS are often living longer and fuller lives than ever before. 

Each person with CdLS is a unique individual who brings to the table a complex array of strengths and challenges, along with their own personality. 

Thus there can never be one program that is best for all people with CdLS. 

The goal of this topic is to provide guiding principles to help prioritize the varied developmental, therapeutic and educational needs of people with CdLS. To ensure wellbeing, meaningfulness of the person with CdlS and the complete family

 


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                         

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Deepen your knowledge of Cornelia de Lange Syndrome

We organize our information about Cornelia de Lange Syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with information that might be of interest to you.

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