Acknowledgements

I had the privilege of shaping this booklet from the many responses given by grandparents. I was deeply moved by the messages these courageous grandmothers and grandfathers offered those just beginning the journey with a child with CdLS. They have truly become beacons for their own families and now they are lighting the way for others. As the mother of a daughter with CdLS, I know what a difference the involvement and support of grandparents can make. I believe that both grandparents and parents will be strengthened by this booklet. I wish to thank the CdLS Foundation for the opportunity to be a part of this very worthwhile project. 

Margaret Hammond

Editor