I had the privilege of shaping this booklet from the many responses given by grandparents. I was deeply moved by the messages these courageous grandmothers and grandfathers offered those just beginning the journey with a child with CdLS. They have truly become beacons for their own families and now they are lighting the way for others. As the mother of a daughter with CdLS, I know what a difference the involvement and support of grandparents can make. I believe that both grandparents and parents will be strengthened by this booklet. I wish to thank the CdLS Foundation for the opportunity to be a part of this very worthwhile project. 

Margaret Hammond


About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: