Adult medical Follow-up

Most people with CdLS reach adulthood because of improved care, especially in the first year of life. 

Many medical disciplines tend to be involved in the medical care of adults with CdLS. As many disciplines are involved, it is important that there is co-ordination in care.




Deepen your knowledge of Cornelia de Lange Syndrome

We organize our information about Cornelia de Lange Syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with information that might be of interest to you.

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