Community

Why sign up?


We all got involved with Cornelia de Lange syndrome for different reasons; You have CdLS, You are a parent, a brother or a sister, You are a family-member or a friend. Or You are caring for a person with CdLS, a doctor, a teacher or a researcher, You are curious... 

And because we are; we understand the importance of sharing our experience!

You will have something to share as well, maybe just that you are 'involved'... but by seeing (reading), talking (writing), learning and sharing we will make life with CdLS more beautiful, that is our dream.

So please signup for our online community, it is free

Join our community!
Maybe you already signed-up, do not signup twice,!