International Scientific Advisory Council (SAC)
welcome
at the International Scientific Advisory Council (SAC)
Our goal
We are eager to support and share!
Knowledge and expertise from all over the world taken together in one group. SAC stands for up-to-date information, available to as many people as possible. Experts on variable topics within Cornelia de Lange Syndrome work together to share interdisciplinary knowledge.
Sharing our information we do through publications in (international, peer-reviewd) journals, the CdLS-world website, newsletters of members and associates of the federation and by organizing symposia and congresses together with the CdLS-world federation.
A lot of information on different topics, collected and constructed in collaboration with parents, professionals and other involved persons, is already available on this website.
Go to Ask the Expert, write down your question and we will as soon and good as possible give a response
צוות
Dr. Andréa Scaletzky
צוות Comunidad Argentina del Sindrome Cornelia de Lange
Dra. Ana Laura Quaglio
Doctor Elias A. Escobedo Paz
צוות Arbeitskreis Cornelia de Lange Syndrom e.V.
Prof. Dr. Frank Kaiser
Prof. Dr. Peter Martin
Prof. Dr. Gabriele Gillessen-Kaesbach
צוות Cornelia de Lange foreningen
Dr. Anne-Marie Bisgaard
צוות Asociación Española Síndrome de Cornelia de Lange (AESCdL)
Dr. Feliciano Ramos
צוות ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
Dr. Armand Bottani
Valerie Cormier-Daire
צוות CdLS Foundation UK and Ireland
Dr. Peter Gillett
Dr. David FitzPatrick
Dr. Jo Moss
Dr. Caroline Richards
Dr. Jane Waite
Dr. Hayley Crawford
Prof. Chris Oliver
צוות Ass. Naz. di Volontariato Cornelia De Lange ONLUS
Dr. Angelo Selicorni
Dr.ssa Anna Cereda
Dr.ssa Paola Francesca Ajmone
צוות Vereniging Cornelia de Lange syndroom
Dr. Sylvia Huisman
Dr. Inge van Balkom
Dr. Leonie Menke
PHD. Kerstin Wendt
Prof. Dr. Saskia Damen
Dr. Paul Mulder
צוות Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
Prof. Dr. Jolanta Wierzba
צוות the Cornelia de Lange Syndrome (CdLS) Foundation USA
M.D. Tonie Kline
M.D, Ph.D. Matt Deardorff
N.C.S.P Mary Levis
Ph.D Julia OConnor
D.M.D. Douglas Clemens
M.D. Natalie Blagowidow
M.D., M.P.H. Marco Grados
M.D. Ian Krantz
Ph.D Cheri Carrico
M.D. Alex Levin
What we do
| Research Centre | |
|---|---|
| 1 | Research which provides a significant contribution towards understanding the science behind the decease |
| 2 | Evidence for a strong knowledge base of the decease |
| 3 | Commitment to furthering scientific knowledge of the decease ideally in a collaborative way |
| 4 | Having received funding for decease-relevant research |
| 5 | Dissemination of new scientific findings related to decease via (inter)national meetings, publications or significant contributions |
