Canadian CdLS Foundation
We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS). We support families, caregivers, clinicians and educators with information, resources and programming. We increase awareness and early diagnosis to ensure each individual with CdLS can lead a high quality of life.
Our Mission
At the Canadian CdLS Foundation, our mission is to ensure every Canadian born with CdLS thrives from birth to old age.
Strategies to accomplish our mission
- Find families impacted by Cornelia de Lange Syndrome (CdLS).
- Raise awareness and improve early diagnosis of CdLS.
- Empower families to care and advocate for their family member with CdLS.
- Provide support, resources, and education to families, care providers, educators and clinicians of individuals with CdLS
