Canadian CdLS Foundation
We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS). We support families and caregivers, increase awareness and early diagnosis to ensure each individual with CdLS can lead a healthy high quality of life.
Our Mission
- Ensure every child born with CdLS in Canada thrives from childhood to old age.
- Empower families to care and advocate for their family member with CdLS.
- Provide support to families and care providers of individuals with CdLS.
- Raise awareness of CdLS in Canada to ensure early diagnosis.