Comunità

Canadian CdLS Foundation



We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS).  We support families and caregivers, increase awareness and early diagnosis to ensure each individual with CdLS can lead a healthy high quality of life.

Our Mission

  1. Ensure every child born with CdLS in Canada thrives from childhood to old age.
  2. Empower families to care and advocate for their family member with CdLS.
  3. Provide support to families and care providers of individuals with CdLS.
  4. Raise awareness of CdLS in Canada to ensure early diagnosis.

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About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org