Canadian CdLS Foundation
We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS). We support families, caregivers, clinicians and educators with information, resources and programming. We increase awareness and early diagnosis to ensure each individual with CdLS can lead a high quality of life.
Our Mission
At the Canadian CdLS Foundation, our mission is to ensure every Canadian born with CdLS thrives from birth to old age.
Strategies to accomplish our mission
- Find families impacted by Cornelia de Lange Syndrome (CdLS).
- Raise awareness and improve early diagnosis of CdLS.
- Empower families to care and advocate for their family member with CdLS.
- Provide support, resources, and education to families, care providers, educators and clinicians of individuals with CdLS
Calendario de nuestros eventos
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
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Canadian CdLS Foundation
What we do
Family Support
- We provide support to families impacted by CdLS though outreach services. We connect families with others in their area or those with similiar challenges.
- We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.
CdLS Awareness
CdLS awareness is important to individuals with the syndrome, their families and their healthcare service providers and families. This will increase understanding, appropriate approaches to care and access to services.Early Diagnosis
Early diagnosis is essential in achieving a high quality of life. Diagnosis will:- ensure appropriate diagnostic testing
- ensure proper management of common health conditions associated with CdLS
- enable access to early intervention services including speech and language therapy, occupational therapy, physiotherapy and other essential therapies
- enable timely access to emotional and other supports to families
Participa en el The World Federation of CdLS Support
Apoya
Lea más sobre nuestra comunidad...
Nuestros voluntarios y colaboradores ...
Provincial Family Coordinator- British Columbia
Kim Fenton
Founder & CEO
Jenni Glad Timmons
Family Coordinator
Ariel Lalonde
Colaboración ayuda....
La colaboración con otras comunidades familiares ofrece conocimientos compartidos, fuerza de defensa, recursos mancomunados y avances acelerados en la investigación. Juntas, estas colaboraciones empoderan a las personas, amplifican las voces, hacen avanzar los tratamientos y aumentan la concienciación, impulsando en última instancia un cambio positivo.
Consulte nuestros socios actuales a continuación
Cornelia de Lange foreningen
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CdLS Foundation UK and Ireland
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Asociación Española Síndrome de Cornelia de Lange (AESCdL)
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Canadian CdLS Foundation
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(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה
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Arbeitskreis Cornelia de Lange Syndrom e.V.
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Comunidad Argentina del Sindrome Cornelia de Lange
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Associação Brasileira Síndrome Cornélia de Lange
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Ass. Naz. di Volontariato Cornelia De Lange ONLUS
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Rarissimas - Associação Nacional de Deficiências Mentais e Raras
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Vereniging Cornelia de Lange syndroom
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ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
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Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
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the Cornelia de Lange Syndrome (CdLS) Foundation USA
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The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)
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Fundación CdLS COLOMBIA
