Gruppe

Canadian CdLS Foundation



We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS).  We support families and caregivers, increase awareness and early diagnosis to ensure each individual with CdLS can lead a healthy high quality of life.

Our Mission

  1. Ensure every child born with CdLS in Canada thrives from childhood to old age.
  2. Empower families to care and advocate for their family member with CdLS.
  3. Provide support to families and care providers of individuals with CdLS.
  4. Raise awareness of CdLS in Canada to ensure early diagnosis.

Kalender unserer Veranstaltungen   

What we do

Family Support

  • We provide support to families impacted by CdLS though outreach services. We connect families with others in their area or those with similiar challenges. 
  • We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.​

CdLS Awareness

CdLS awareness is important to individuals with the syndrome, their families and their healthcare service providers and families. This will increase understanding, appropriate approaches to care and access to services.

Early Diagnosis

Early diagnosis is essential in achieving a high quality of life. Diagnosis will:
  • ensure appropriate diagnostic testing
  • ensure proper management of common health conditions associated with CdLS
  • enable access to early intervention services including speech and language therapy, occupational therapy, physiotherapy and other essential therapies
  • enable timely access to emotional and other supports to families
Beteiligt sich an der The World Federation of CdLS Support
Unterstützt
ca

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Unsere Freiwilligen und Unterstützer

Provincial Family Coordinator- British Columbia

Kim Fenton

Founder & CEO

Jenni Glad Timmons

Family Coordinator

Ariel Lalonde

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Ansonsten treten Sie in Kontakt mit Ihren nationalen Experten


Unsere Gruppen

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Dansk

Cornelia de Lange foreningen

dänemarknorwegenschwedenfinnland
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English

CdLS Foundation UK and Ireland

vereinigtes königreichirland
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spanien
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English

Canadian CdLS Foundation

kanada
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

deutschlandösterreichschweiz
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentinien
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasilien
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italien
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

niederlandebelgien
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

frankreichschweizbelgienalgerien
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polen
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

vereinigte staaten
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australienneuseelandmalaysiaphilippinensingapur
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Español

Fundación CdLS COLOMBIA

kolumbien

Über den Inhalt der Website

Alle Informationen auf dieser WebSite dienen ausschließlich der Aufklärung. Der richtige Ort, um spezifischen medizinischen Rat, Diagnosen und Behandlungen zu erhalten, ist Ihr Arzt. Die Nutzung dieser Website erfolgt ausschließlich auf eigene Gefahr. Wenn Sie etwas finden, das Ihrer Meinung nach einer Korrektur oder Klärung bedarf, lassen Sie es uns bitte wissen: 

Senden Sie eine E-Mail: info@cdlsWorld.org