Comunidad

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)



Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.

The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.

The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.

We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.

 

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mission

Calendario de nuestros eventos   

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.
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Información de contacto

Gwilym Conran

President

Email: president@cdls.org.au

Phone: +61 409 633 661

PO Box 151, Darwin, NT 0801

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Conéctese

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De lo contrario, póngase en contacto con su centro nacional de expertos

Red de expertos para The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)


Colaboración ayuda....

 

La colaboración con otras comunidades familiares ofrece conocimientos compartidos, fuerza de defensa, recursos mancomunados y avances acelerados en la investigación. Juntas, estas colaboraciones empoderan a las personas, amplifican las voces, hacen avanzar los tratamientos y aumentan la concienciación, impulsando en última instancia un cambio positivo.

Consulte nuestros socios actuales a continuación

 

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Dansk

Cornelia de Lange foreningen

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English

CdLS Foundation UK and Ireland

reino unidoirlanda
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

españa
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English

Canadian CdLS Foundation

lblflagcanada
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

alemaniaaustriasuiza
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasil
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italia
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

países bajosbélgica
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

franciasuizabélgicaalgeria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polonia
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

estados unidos
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

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Español

Fundación CdLS COLOMBIA

colombia

Sobre el contenido del sitio web

Toda la información contenida en este sitio web tiene únicamente fines educativos. El lugar para obtener consejos médicos específicos, diagnósticos y tratamientos es su médico. El uso de este sitio es estrictamente bajo su propio riesgo. Si encuentra algo que cree que necesita ser corregido o aclarado, por favor háganoslo saber en: 

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