Kommunitetet

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)



Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.

The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.

The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.

We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.

 

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Begivenhedskalender    

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.

Kontaktoplysninger

Gwilym Conran

President

Email: president@cdls.org.au

Phone: +61 409 633 661

PO Box 151, Darwin, NT 0801

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Opret forbindelse

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Ellers skal du kontakte dit nationale ekspertisecenter

Netværk af eksperter for The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)


Samarbejde hjælper....

 

Samarbejde med andre familiegrupper giver mulighed for at dele viden, styrke fortalervirksomhed, samle ressourcer og fremskynde forskningen. Sammen styrker disse samarbejder enkeltpersoner, forstærker stemmer, fremmer behandlinger og øger bevidstheden, hvilket i sidste ende skaber positive forandringer.

Se vores nuværende partnere nedenfor

 

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Dansk

Cornelia de Lange foreningen

danmarknorgesverigefinland
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English

CdLS Foundation UK and Ireland

det forenede kongerigeirland
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spanien
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English

Canadian CdLS Foundation

lblflagcanada
{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=English, headerIconURL=, headerTitle=Canadian CdLS Foundation, showHeaderStatus=true, tileStatus=[]}
עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

tysklandøstrigschweiz
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasilien
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italien
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

nederlandenebelgium
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

frankrigschweizbelgiumalgeriet
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polen
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

forenede stater
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australiennye zealandmalaysiaphilippinernesingapore
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Español

Fundación CdLS COLOMBIA

colombia

Om indholdet af hjemmesiden

Alle oplysninger på dette websted er udelukkende til undervisningsformål. Det er din læge, der er det rette sted at få specifik medicinsk rådgivning, diagnoser og behandling. Brug af dette websted sker udelukkende på eget ansvar. Hvis du finder noget, som du mener, der skal rettes eller præciseres, bedes du give os besked på: 

Send en e-mail: info@cdlsWorld.org