Recently our son, age 4, was diagnosed with ADHD but we are having some abnormal side-effects with the particular medications that are being used. Tenex is one of the medications. They are having the desired effect in that he is more "controllable" and tolerant but the medications are having an adverse effect on his speech. It causes him to stutter and slur his words and also he stops speaking in full sentences. Do you have any information on the treatment of ADHD in children with CdLS?

SAC approved answer

There are a number ofmedications for ADHD that have been used in CdLSs. Tenex is one suchdrug but it can cause aphonia (inability to speak, loss of voice) or other variants, as this child is experiencing. It will clear after the drug is stopped, and there may be treatment alternatives. Many of these drugs have side effects, but it may be trial and error until the best one is found for your child.

MG/TK 7-13- 10

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