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De la fuerza de los miembros de la familia

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with síndrome de Cornelia de Lange (CdLS). 

La calidad de vida es, además de proporcionar "salud" médica a las personas con CdLS, proporcionar cuidado y bienestar, esto depende de la fuerza y la felicidad de los miembros de la familia.


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