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Medical  Care Services


        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

From Pediatric to Adult Healthcare Services

The transition from pediatric to adult healthcare is a critical stage of life for everyone involved. The services provided can change significantly depending on the country or state you live in. This section will inform you about these care services and how to 'transition' into them. 


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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

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