Transition

        For forældre, plejere, sundhedsplejersker og lærere opstår der ofte bekymringer og spørgsmål vedrørende pleje og velvære for personer med Cornelia de Lange syndrom. 

“Transition” is the word we will use for the changes, planned and unplanned, that the person with CdLS and their family will go through in a lifetime.

Sometimes they are true transitions – a process or a period of change – and sometimes (even despite our best efforts) they can be abrupt. 

While we can never control the future or plan for every possibility, the better informed we are as to what to expect, the better equipped we are to take appropriate and timely action to make these transitions as smooth as possible.
Some of the most important changes are based on current laws, that cover the right to educational services from birth through the time the individual “ages out.”
Transitions occur with the move from early intervention, pre-school, school and then to adult life.

Other important law-based changes occur when the individual reaches the age of majority. At this time, a guardianship may be necessary for family members to have a voice in decisions involving basic matters, medical care or where the individual will reside. 

See below the topics that zoom in on different aspects of Transition...

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