For forældre, plejere, sundhedsplejersker og lærere opstår der ofte bekymringer og spørgsmål vedrørende pleje og velvære for personer med Cornelia de Lange syndrom.
Anxiety is common in individuals with CdLS. Anxiety in CdLS usually presents as social anxiety (excessive worry about daily life events with no obvious reason for worry), separation anxiety (excessive fear about separation from home or a parent/carer) or selective mutism (not speaking in social situations where there is an expectation for speaking, e.g. at school).
Anbefaling(er)
Anxiety
R59
Interventions targeting problematic repetitive behaviour in individuals with CdLS should be sensitive to anxiety, sensory problems and social demands. These interventions should also consider environmental factors.
R60
Atypical presentation of anxiety and mood disorder should be considered when behaviour changes occur.
R61
As anxiety is common in individuals with CdLS during periods of environmental change/transitions, a planned program should be implemented.
R62
Treatment of anxiety and mood disorders in individuals with CdLS should be considered using psychosocial interventions (therapies) and pharmacotherapy (medication).
Bemærk venligst, at Spørg eksperterne-tjenesten består af frivillige fagfolk inden for forskellige områder. Svarene betragtes ikke som en medicinsk, adfærdsmæssig eller pædagogisk konsultation. Spørg eksperten er ikke en erstatning for den pleje og opmærksomhed, som dit barns personlige læge, psykolog, uddannelseskonsulent eller socialrådgiver kan yde.
