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Anxiety


For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome. 

Anxiety is common in individuals with CdLS. Anxiety in CdLS usually presents as social anxiety (excessive worry about daily life events with no obvious reason for worry), separation anxiety (excessive fear about separation from home or a parent/carer) or selective mutism (not speaking in social situations where there is an expectation for speaking, e.g. at school).


Recommendation(s)

Anxiety

R59
Interventions targeting problematic repetitive behaviour in individuals with CdLS should be sensitive to anxiety, sensory problems and social demands. These interventions should also consider environmental factors.
R60
Atypical presentation of anxiety and mood disorder should be considered when behaviour changes occur.
R61
As anxiety is common in individuals with CdLS during periods of environmental change/transitions, a planned program should be implemented.
R62
Treatment of anxiety and mood disorders in individuals with CdLS should be considered using psychosocial interventions (therapies) and pharmacotherapy (medication).


                                                                                                                                                                                                                                                                                                                          

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