Health difficulties in CdLS...

        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

Research shows that children and adults with CdLS tend to suffer from more health problems compared to other individuals with intellectual disability. The health difficulties that occur most frequently include eye problems, stomach/intestinal issues, genital problems and limb abnormalities.

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