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Adult medical Follow-up


        Rodzice, opiekunowie, pracownicy służby zdrowia i nauczyciele często mają wątpliwości i pytania dotyczące opieki i dobrego samopoczucia osób z Zespół Cornelia de Lange (CdLS). 

Most people with CdLS reach adulthood because of improved care, especially in the first year of life. 

Many medical disciplines tend to be involved in the medical care of adults with CdLS. As many disciplines are involved, it is important that there is co-ordination in care.



                                                                                                                                                                                                                                                                                                                                                                                                                                                         

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