תשאל את המומחה

What medical care may a child with CdLS need?


        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

There are a number of area's where medical care can be needed in CdLS, depending the severity and environmental circumstances.


המלצות

What medical care may a child with CdLS need?

R10
Every infant and young child with CdLS should be assessed for cardiac (heart) and renal (kidney) malformations subsequent to diagnosis.
R19
Regular follow-up of every child with CdLS is needed, preferably by a paediatrician or clinical geneticist experienced in treating individuals with CdLS; schedules depend on local practices and possibilities.


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                   

Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

 xwiki:WaihonaPartners.deDuisburgEssen.WebHome