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Planning of Care

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange syndrome.

People with CdLS require life long planning of Care


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                 

Deepen your knowledge of Cornelia de Lange syndrome

We organize our information about Cornelia de Lange syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with information that might be of interest to you.

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All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org