Adult medical Follow-up

        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

Most people with CdLS reach adulthood because of improved care, especially in the first year of life. 

Many medical disciplines tend to be involved in the medical care of adults with CdLS. As many disciplines are involved, it is important that there is co-ordination in care.

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